In my other life as Trustee at PIP-UK there’s always a lot going on and we’d like our supporters to be as involved as possible.

There are lots of ways to help us, some being really quick as simple. We want to let as many people as possible know who we are and what we do, so people helping to spread the word is an invaluable way of supporting us. If you are on Twitter, you can follow us @PIPManchester and you can always like our Facebook page and get your friends to do so to!

The more people who know about us, the easier it will be for those who need our help to find us!

The other main way of helping is fund-raising. There are lot’s of organised runs that you can take part in (click here to go to Runner’s World for a list), but if running isn’t your thing, there are other activities that can help us raise money as well. Having a cake sale at work is always a popular option. Many companies have a sponsored charity throughout the year, so why not suggest us? If your company would like any more information, our Trustees will be more than happy to speak to them for you.

If you have other ideas, but are not sure how to put them into practice, send us an email and we’ll be happy to help. Alternatively leave a comment letting us know the sorts of events you’d be interested in attending and we’ll do the rest

So it’s been a while and a lot has happened since I last updated, some of which I may post blog…maybe

In an attempt at chronological order I went to Dublin with Claire and Em for Claire’s 30th, I took over the pub for the weekend for my 30th and had a bouncy castle in the back garden whilst Dad attempted to do a bbq (I really hope we didn’t poison any one!) I went to see Guns n Roses twice, once in Manchester with Mum and then Adam took me down to London where we were in the posh seats at the O2, then I saw Barry Manilow in concert in Manchester a couple of weeks later. I finally got to see Nick in a college show, which is fortunate as it was his graduation one, I was so emotional and proud of him, I know how hard he’s worked and really hope he gets the job of his dreams now.

The charity I’m a trustee of PIP-UK is really coming together. We’ve had a few trustee meetings now and are building a website which we hope to launch officially in the next couple of months. We’ve had another fund raiser – The Stockport Legacy 10k in which we raised over £200, but our main aim was to let people know about us. We want to raise awareness of little know syndromes that affect children and provide help and support to their parents. We’d really appreciate it if as many people as possible ‘liked’ our facebook page and would love to hear from parents with children with such syndromes who would like to share their stories to help others.

http://www.facebook.com/pip.uk.org

And now for my Aloha Friday question…

How long have you been blogging for and wha’ts the longest break you’ve taken?

In the 9 years I’ve had this site, the last 3 months have been my longest break!